The dynamic
volunteers of VYLH-Mindanao led the advocacy campaign in different areas as far
as the provinces of Surigao del Sur, Misamis Oriental, Bukidnon and Davao.
Schools, communities and even the public and private sectors were engaged in this
noble act of advocating. Among the activities conducted were radio plugging and
airing of Philippine Society for Orphan Disorders or PSOD’s theme song “Lalaban
Kami” in Radyo ni Juan, signature campaign for the enactment of Rare Disease
Act of the Philippines, display of PSOD’s slogans and posters to
various institutions as well as group lectures and room-to-room orientation to selected students of
Xavier University, Central Mindanao University and community high schools in
Davao. The event’s highlight was the denim ribbon distribution and wearing of
maong jeans in solidarity with the Global Genes Project‘s “Wear that you Care” campaign
during the Rare Disease Day.
The Newborn Screening Center-Mindanao employees,
spearheaded by Dr. Abarquez, once again showed their support for the occasion
by marking the special day as an official blue jeans day! The wearing of maong
jeans and the pinning of denim ribbons signified the personnel’s
call-for–solidarity with the campaign. The Southern Philippines Medical Center
staff and employees and patients also joined the week-long PSOD video film
showing, signature campaign, and lectures in the different areas like the OPD,
SPMC lobby, OB and Pedia wards. With the theme “Rare Disorders without
Borders”, this year’s main objective was to create awareness on the different
orphan and rare disorders, not only locally but globally as well.
[For updating]
_________________
Contributors: Aple Tadlas, RN (VYLH-Philippines Mindanao Secretariat)
