The dynamic volunteers of VYLH-Mindanao led the advocacy campaign in different areas as far as the provinces of Surigao del Sur, Misamis Oriental, Bukidnon and Davao. Schools, communities and even the public and private sectors were engaged in this noble act of advocating. Among the activities conducted were radio plugging and airing of Philippine Society for Orphan Disorders or PSOD’s theme song “Lalaban Kami” in Radyo ni Juan, signature campaign for the enactment of Rare Disease Act of the Philippines, display of PSOD’s slogans and posters to various institutions as well as group lectures and room-to-room orientation to selected students of Xavier University, Central Mindanao University and community high schools in Davao. The event’s highlight was the denim ribbon distribution and wearing of maong jeans in solidarity with the Global Genes Project‘s “Wear that you Care” campaign during the Rare Disease Day.
The Newborn Screening Center-Mindanao employees, spearheaded by Dr. Abarquez, once again showed their support for the occasion by marking the special day as an official blue jeans day! The wearing of maong jeans and the pinning of denim ribbons signified the personnel’s call-for–solidarity with the campaign. The Southern Philippines Medical Center staff and employees and patients also joined the week-long PSOD video film showing, signature campaign, and lectures in the different areas like the OPD, SPMC lobby, OB and Pedia wards. With the theme “Rare Disorders without Borders”, this year’s main objective was to create awareness on the different orphan and rare disorders, not only locally but globally as well.
Contributors: Aple Tadlas, RN (VYLH-Philippines Mindanao Secretariat)