by Zecariah Chito A. Jumawan
Dumaguete City, Philippines – A wave of community spirit swept through Dumaguete City on March 1, 2025, as over 959 runners participated in the VYLH-Philippines Run for Rare Disease. Organized by the dedicated Volunteer Youth Leaders for Health – Philippines Dumaguete Members, the event aimed to illuminate the often-overlooked issue of rare diseases in the Philippines.
Under the expert guidance of Mr. Floyd Edrea and in strong partnership with the Dumaguete City Health Office and the Dumaguete City Sports Office, the event was a resounding success. The streets of Dumaguete pulsed with energy as participants of all ages, from an enthusiastic two-year-old to an inspiring 79-year-old, demonstrated their unwavering commitment to the cause.
A diverse and passionate crowd rallied for the cause, drawing strong support from local businesses, government agencies, and talented individuals. New Bian Yek Commercial, Inc. led the way by sponsoring 75 runners, while Negros Oriental Provincial Hospital and Negros Oriental Police Provincial contributed 24 and 21 runners, respectively, significantly amplifying the event’s impact. Skilled photographers and videographers from Dumaguete City generously volunteered their time to capture the event, ensuring the message of rare disease awareness resonated far beyond the finish line.
The event was further elevated by the presence of Dr. Ebner Bon G. Maceda, unit head of the Clinical Genetics & Research Unit of the University of the Philippines Manila. His presence, alongside VYLH-Philippines members from Luzon and Cebu, underscored the national significance of the event.
The VYLH-Philippines Run for Rare Disease stands as a powerful testament to the strength of community and the critical importance of raising awareness for rare diseases. Part of the proceeds from the run will be directly donated to the identified families in Negros Oriental with children affected by rare diseases, providing essential support to those facing the unique challenges associated with these conditions.
The organizers expressed their sincere gratitude to all the participants, sponsors, volunteers, and the LGU of Dumaguete City for their invaluable contributions to the event’s triumph. The overwhelming response highlighted the growing awareness and unwavering commitment to supporting those living with rare diseases in the Philippines.
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